Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members4,576 posts

missing life before ataxia

Hi, I really miss the old me before I had ataxia. Ataxia took so much away from...

Can you do too much exercise?

I wonder if any one else has the same experience as me. We all know how importa...
Libra7 profile image

I can people with cerebellar ataxia teach themselves to walk again?

Hi folk, I have not written anything on here for a while, but I have two questio...

Trembling

Hello I have SCA6 and it has been effecting my life for about 5 years, I am...
Kauri1 profile image

vestibular dysfunction

Hello, I was diagnosed 7 years ago with SCA unknown cause, following blood tests...

Mollii Suit…..giving muscle stimulation

What is a Molli Suit A comfortable jacket and trousers with built-in electro-s...
wobblybee profile image

Don't use an EMS machine if you get burning hot feet at night.

Tried using an EMS machine for 4/5 days not sure if it helped peripheral neuropa...
carol31271 profile image

Peripheral neuropathy?

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limi...
penelope2 profile image

Russia

You have to be hard to have ataxia so I think we should all get together to beat...

driving a car

Ihave stopped driving my manual car. I have lost confidence as feet don’t always...
Pussycat1 profile image

pharmacological coma

Is it possible to resort to pharmacological coma when a person suffering from at...

Many thanks!

Thank you so much to all the people who took the trouble to answer my query abou...
Libra7 profile image

Genetic diagnosis

Hi all, sorry I haven't posted anything for ages but sometimes life is like that...

CEREBAL ATAXIA

Wounded on patrol in the Middle East and a Motar Shell hit my section and I rece...
Guards profile image

How things are now!

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me aw...
carol31271 profile image

The good, the bad, and the not so good looking....

I confess I got this idea from an earlier post. Copied the concept as a complim...

Key hole locator

I was diagnosed with cerebellar ataxia about 7 years ago affecting my balance sp...
Velocepede profile image

My good friend

My best friend 👍🏻
paul456 profile image

Lost site

I lost this site gain. Why?

🙂For those of us who have fond memories of Bill Treacher.

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series...
wobblybee profile image

A new study on physical activity in hereditary ataxias is recruiting for participants

If you or someone you know is over 18 and has a confirmed diagnosis of a heredit...
Irmmy profile image

neck problems

can anyone tell me why my neck leads to the left recently with a burning sensati...
Littlepopeye profile image

Researchers at King’s College London are recruiting participants for a remote study on online peer support.

Researchers from King’s College London, software developers, and a group of peop...

[i]Disability is other people: My Superhero Story[/i]

I have lived with ataxia for 34 years. I am an Ataxia UK Ambassador and former C...

Tremor Assessment

Has anyone had a tremor assessment prior to deep brain stimulation?
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About us

Ataxia UK is the national charity for people affected by ataxia. Membership is free and open to anyone affecte...

Read more about Ataxia UK
0207 582 1444