Link to Rare Disease UK Survey

Posted by HarryB Ataxia UK

18 Jan 2013

Dear all

Rare Disease UK have sent the following link:

survey5.orcinternational.co...

I hope you have more luck this time! If you have any problems please so not hesitate to let me know.

Best Wishes

Harriet

3 comments

Champ

19 Jan 2013

If the above doesn't work for you then please try this:
To access the survey please go to www.raredisease.org.uk/news... & then click on his page where it says "You can complete the survey here".

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tedjohnson

19 Jan 2013

Hi Harriet
I have received the survey today but had to do 2 as I have also got Hairy Cell Leukeamia
but as it is snowing outside it kept me 'out of trouble' !!!
Hope you are keeping well and warm
Cheers Ted

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